I just want to thank you for commenting on the message board. I do agree that it is slow and as one of the moderators I'm hoping this post will allow everyone to see who is frequenting the board. So introduce yourself. Feel free to share who you are, where you are from and any other information you would like(diagnosis, concerns, treatment). I will start. I'm Jai Combest a Social Work Counselor in the GI Clinic and MD Anderson in Houston, Texas. Who else is out there?
Posted: 04 Oct 2011 04:10 PM Originally Posted: 04 Oct 2011 04:11 PM
Hi Jai! I'm Kim, my husband David is a patient at MDA in the GI department :) We live in Fort Worth and drive down whenever he has an appt. He is diagnosed with Islet Cell or neuroendocrine tumor of the pancreas (PNet) with mets to the liver and lymph nodes. He's been through 6 treatments of FAS (5Fu, Streptazocin and Adriamycin). He had a great response but after 6 treatments started to show some mild progression. He has been taking Afinitor for one month and has tolerated it pretty well. Would love to talk to someone who has been on Afinitor for longer.
I am Richard Stadelmann, a professor of philosophy and religious studies at Texas A&M in College Station, Texas, age 79. I was diagnosed with pancreatic cancer in July of 2007, and had chemo and radiation beginning in August. I had surgery to remove 2/3 or more of the pancreas, tail end, in December of 2007. After surgery had another round of chemo. The original cancer was between stage two and three. Since that time I have had frequent MRIs and Cat Scans, etc. Currently I appear to be "cancer free," but they are watching several "spots," so it is always tension time. I will be back at Anderson next week for MRIs and Cat scans and X rays, etc. I also had my prostate removed for prostate cancer in January of 1996.
Hi - I'm from Houston. My sister has just been diagnosed with pancreatic cancer. At first glance it appeared this site was not active, but I found my way to this screen and was happy to see activity.
We need to find a doctor for a referral at MDA. We have no definitive info yet as to the type, but the biopsy report came back affirmative. Obviously, we want to get into MDA as soon as possible.
Clinical trials? Which doctor? Where are the best pancreatic studies/reports located on the site? I'm proficient with other types of cancer research (clinical trials), but not with this particular one.
Hi Everyone! I'm from the Tyler, TX area and was diagnosed Aug 2nd. After my initial shock wore off, I self referred to MD Anderson on their website and the next day went to my doctor and told him I need his office to get in touch as well. I have my first appointment this Monday, Aug. 27th. My doctor here wanted me to have the Whipple done here, but after much researching, I decided I wanted a surgeon with much experience doing the Whipple. I have also been on the Whatnext forum and have found several people who have gone through all of this. That has been very helpful. I'm feeling very positive and am very happy that the waiting is over and the ball has started to roll. I look forward to Monday!