I was diagnosed with Urethral Cancer in April 2007. At this time, I was lucky to have insurance that covered my chemotherapy and surgical treatment at MDA. However, I live in the Dallas/Ft. Worth area and I have not been able to return to work. My husband's insurance does not cover MDA, therefore I have been seeing an Internist for follow-up care and treatment. I have tried to find a local internist who has cared for an Urethral Cancer patient before, but I have not been successful. Although this physician does everything I tell him to do, he is really clueless about how to care for me postoperatively. He feels an oncologist should follow me, or even a urologist. Since I have been hopefully cured by MDA and I am currently not receiving chemo, or urology services I see no need to be followed by these two specialties. My question is as follows:
1) I have been getting an MRI (I am allergic to iodine) with and without contrast on my pelvis and abdomen every six months. In addition, I am getting a PA/Lat chest x-ray and a complete lab panel, including BUN and Creat. Do I need to continue these tests on a 6 month interval, or should I move to an annual schedule?
2) I so appreciate your bladder cancer updates, but why do you never discuss Urethral cancer? I didn't have bladder cancer and I don't like always being rolled up into this category.