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Lhearn

Lhearn

Total Messages 106

Subject:No Topic

I was diagnosed with Urethral Cancer in April 2007.  At this time, I was lucky to have insurance that covered my chemotherapy and surgical treatment at MDA.  However, I live in the Dallas/Ft. Worth area and I have not been able to return to work.  My husband's insurance does not cover MDA, therefore I have been seeing an Internist for follow-up care and treatment.  I have tried to find a local internist who has cared for an Urethral Cancer patient before, but I have not been successful.  Although this physician does everything I tell him to do, he is really clueless about how to care for me postoperatively.  He feels an oncologist should follow me, or even a urologist.  Since I have been hopefully cured by MDA and I am currently not receiving chemo, or urology services I see no need to be followed by these two specialties.  My question is as follows:

1) I have been getting an MRI (I am allergic to iodine) with and without contrast on my pelvis and abdomen every six months.  In addition, I am getting a PA/Lat chest x-ray and a complete lab panel, including BUN and Creat.  Do I need to continue these tests on a 6 month interval, or should I move to an annual schedule? 

2) I so appreciate your bladder cancer updates, but why do you never discuss Urethral cancer?  I didn't have bladder cancer and I don't like always being rolled up into this category. 

Many thanks, Karen


Posted: 11 Feb 2010 09:53 AM
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Lhearn

Lhearn

Total Messages 106

Subject:No Topic

 

In addition to your imaging and laboratory tests, you should have a pelvic exam every 6 months. Since it has been 2 years since you had cancer, the MRI could be done annually.

Bladder cancer is much more common than urethral cancer. That is why it is discussed more often.


Posted: 12 Feb 2010 03:22 PM
Originally Posted: 12 Feb 2010 03:23 PM
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