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Lhearn

Lhearn

Total Messages 106

Subject:chondrosarcoma

I had surgery at MDA 5 years ago this week for a skull base chondrosarcoma.  As follow-up, I had stereotactic radiosurgery a few weeks later on the residual tumor.  I now come out to Houston (I live near Atlanta) once a year and all is well.  I am so grateful!

I have had numbness of my tongue and cheek tissue and some loss of hearing ever since the surgery and treatment, and understand that this is normal.  However, the hearing loss continues even now to worsen and the tongue numbness, too.  I have difficulty hearing much of anything in my affected ear.  My tongue seems to have lost some of its movement to the point that it's sometimes hard to move food around in my mouth as before.  If I touch my cheek (inside or out) or my tongue, I can feel that.  It's like the numbness is "inside".  It is all worse at times and better at times.   Is any of this ever reversable?  Would it be an issue for an ENT or some other specialist?

Thank you!!!!!


Posted: 08 Apr 2010 09:27 AM
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Lhearn

Lhearn

Total Messages 106

Subject:chondrosarcoma

Thank you for your query.  I am delighted to hear that you are a cancer survivor of five years.  Each day is such a blessing.  Indeed, based on the surgical procedure and follow-up radiation to the base of the skull it would be understood that numbness to the areas you mentioned and decreassed hearing loss could occur.  I am not certain of your fields of radiation, yet delayed side effects from radiation may occur months to years after the initial treatment.  Since you state you are having difficulty moving food around in your mouth, it concerns me that your swallowing might become affected.  After asking your physician to address these changes in symptoms, i would recommend that you discuss schdeuling a consult with a speech therapist for a swallow analysis and a referral to an ENT for hearing support.  Hope this helps a bit!  Thanks, Millie :)


Posted: 08 Apr 2010 09:28 AM
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