Thirty Countries Form Inflammatory Breast Cancer World Alliance

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Representatives from all continents gathered at the Inflammatory Breast Cancer World Alliance meeting, held on Dec. 9 at the CTRC-AACR San Antonio Breast Cancer Symposium. The meeting was chaired by Massimo Cristofanilli, M.D.

Clinical and pre-clinical investigators and advocates from 30 countries have joined forces to find more effective treatment of this most aggressive type of breast cancer. In rare cancers such as IBC, an international collaborative is particularly important to create a large pool of patient data to draw conclusions.

IBC prevalence has been reported in North America, much of Europe and parts of Africa. These studies have contributed to the estimates that IBC makes up 1% to 5% of breast cancers. Published data have indicated that IBC may be more prevalent among women in North Africa (20% of breast cancers) and African-Americans (up to 10% of breast cancers).

Little is known about the prevalence of IBC among other ethnicities. To address this, the alliance has established an international registry trial that links epidemiologic data and patient tissue and blood samples from multiple centers around the globe. Members of the alliance will use the banked patient samples to explore the proteomics, genomics and immunobiology of the disease.

The 2010 inflammatory breast cancer scientific conference will be held on Oct. 5-7 in Marseilles, France, immediately preceding the European Society of Medical Oncology meeting in Milan. Patrice Viens, M.D., Institut Paoli-Calmettes, Marseilles, France, World Alliance member, is the program director. The first call for abstracts will be issued in early 2010.

The Inflammatory Breast Cancer World Alliance is committed to improving outcomes of women worldwide affected by IBC.

For information on joining the Inflammatory Breast Cancer World Alliance or the 2010 conference, contact

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