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Chronic myeloid leukemia survivor: Life after the finish line

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chronic_myeloid_leukemia_survivor_l.JPGBy Justin Ozuna

It's difficult to remember what it was like in December 2004, a season of life before bone marrow biopsies, oral chemotherapy, doctor's visits, frequent blood tests and medication-adherence anxiety.

Cancer was foreign and I was invincible, naïve and concerned only with the agenda of being young and carefree, parallel to the lyrics of Bruce Springsteen's "Born to Run."

Little did I know that the endless highway with unlimited dreams would detour to a cancer center, where schedules and procedures represent a different kind of freedom -- one closer associated with the songs of a more reflective and introspective Johnny Cash. 

Last great milestone
A week and a half ago, I received the news that leukemia finally raised its white flag. The collaborative efforts of my incredible medical team have led me to the last great milestone in the fight against CML, a complete molecular remission.

Cognitively, that's the greatest news I've ever heard. Emotionally, it's a difficult reality to fully accept.

In many ways, I feel like a hostage who's experienced Stockholm syndrome, a psychological phenomenon in which abductees express empathy and have positive feelings toward their captors, sometimes to the point of defending them.

I've known cancer for seven long years. I've experienced the emotional breadth of frustration, fear, intimidation, loneliness, insecurity, hope, encouragement and love in intimate ways.

I've fought hard to filter out the negative, to nurture the positive and embrace the in-between. I've failed. I've won. I've lived.

The other side

And merely six months after my last great battle and the lowest point of my life, my medical team has raised my arm in recognition of victory. I have won. The rescue is over, and as difficult as it is to believe, I'm free to walk away.

I'm learning that walking away isn't as easy as it sounds. A passing storm and an open sky has exposed the damage that a cancer diagnosis has left behind.

Fallen buildings, fractured homes and scattered possessions are a symbol of a life put on hold. I'm grateful I made it to the other side, but I'm not yet sure I truly understand what remission means. It's likely that my seven-year struggle is to blame.

Every cancer patient understands the effect his or her diagnosis has on the concept of time. It's much like waking up from a coma. The world should have stopped, but it didn't. People grew, situations changed, the world progressed, all while I tried my best to keep up, constantly falling to frequent setbacks, false starts and new challenges.

I suppose that's part of the "new normal," which is not normal at all. The ability to adapt and overcome life's interruptions is as much a part of me moving forward as it is an exposable tool of survival that I'm tempted to leave behind.

Picking up where life left off

Maybe I'm wrong to believe that I'll return to December 2004. After all, my existence is different now, but I'm picking up where life left off. I'm determined to not allow the dreams of my cancer-free days to go unaccomplished.

The challenge to catch up to the world around me is much greater than the one met by my organic instinct to survive. I'll be the oldest person in my college classroom, the leukemia survivor who struggles to adapt to a cancer-free world, and the underclass graduate who's unable to hold back his tears as he finally walks across that elusive stage.

As I separate from cancer, maybe I'll realize the lyrics of "Born to Run" again. Maybe my walk will turn into a jog and my jog will turn into a sprint. I have no idea.

What I do know, however, is that I'm finally headed in the right direction. I've been given a second chance to fulfill my dreams. I have a new finish line now, and I plan to cross it with the same grateful heart, perseverance, and hope that I've learned to embrace along my journey.

In the medical community, this is called remission. To one who's overcome a great deal of obstacles, it's called freedom.  

Justin Ozuna lives in Dallas and was diagnosed with chronic myeloid leukemia in January 2006. He is a Texas state representative and Dallas/Fort Worth facilitator for the National CML Society and a patient at MD Anderson. His mission is to capture the ups and downs of a young adult living with cancer and to serve people through humor, encouragement, hope and adversity at his blog, theozunaverse.com.

Read more posts by Justin Ozuna

2 Comments

Hi Justin,

My mom also has CML, What i have understood from the above article, that you have completely recovered from CML Could you pl share you experience with me. I would like to refer to the same treatment form my mother. you can pl contact me at my mail id mohitchadhaca@gmail.com.

Hi! Thanks for reaching out to me. Yes, I'd love to share my story/experiences with you! I'll help out in any way that i can. Expect an email from me this afternoon.

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