This is a continuation of yesterday's post on how pre-surgery visualization helped me.
Telling my surgical team about visualization
I didn't tell my surgical team about my new visualization practice right away.
I decided to bring it up during a surgery planning appointment. At the end of our visit, after we had discussed all of the medical aspects of the procedure, I mentioned the details of my request. "I'm very fond of
integrative therapies because I believe in them, and I know they will help me heal better and faster," I said to my surgeon and nurse.
"But my surgical team has to be involved. Can you please help me?" I was relieved when they respectfully agreed to participate and put notes about my request in my chart.
Continue reading How pre-surgery visualization helped me: Part II.
By Jila Tanha
In July 2010, I was diagnosed with a serious disease that required three major surgeries over the course of a year-and-a-half.
Because I work in The Learning Center, you would think I would approach my own health with an "I know all that" attitude. Well, that didn't happen.
The reality of my diagnosis hit me, and anxiety took over.
I was facing three surgeries and wanted to do the right things to help my body prepare.
I wanted to heal quickly with fewer post-surgery complications.
Continue reading How pre-surgery visualization helped me.
The internet can make life easier, but the answers it gives you can be overwhelming when you're dealing with cancer.
So what's the best way to find the most reliable, accurate information? Through The Learning Center at MD Anderson. We'll help you find the latest information about general health, cancer and issues related to cancer and cancer prevention. All services are free.
A credible resource
The Learning Center staff provides information that's current and accurate from trustworthy sources, including scientific and medical databases.
Continue reading A trusted resource: The Learning Center helps patients stay informed.
By Mary Dewberry
In January 1989, MD Anderson went smoke-free. It happened the same month and year that I started working here.
Now when people see me, they think of the American Cancer Society's Great American Smokeout (GASO) and saying no to tobacco. That's because for 23 years, I've helped coordinate GASO's logistics and direct people to resources here at MD Anderson during the event, which is held every November.
But for me, GASO isn't about trying to quit for one day or one week. It's about providing resources to help year-round.
Here are a few of the resources I recommend to those trying to quit.
Continue reading How to quit smoking .
By Desirée Gonzales Phillips
Desirée Gonzales Phillips is a senior health education specialist in the Patient Education Office and has worked at MD Anderson 10 years.
Bathing suit season is over, thank goodness! Time to put the suit and cover-up back in the drawer until next season's magazine cover says "10 Tips to Get Bathing Suit Ready." When summer rolls around again -- no pun intended -- I will need 25 tips.
Like most people, I often complain or criticize my body or want to change something about it. But for many of our patients, body image can go much deeper. It can be a lifetime concern.
Whether due to hair loss, scars, lymphedema or other treatment side effects, some people have a hard time dealing with appearance and body image changes.
Are you placing unrealistic demands on your body to look the way it did before cancer?
Continue reading Bathing suits and beyond: 7 tips to improve your body image.
By Linda Yarger
Linda Yarger is a senior librarian in The Learning Center and has worked at MD Anderson 16 years.
At one time cancer was a dark cloud hanging over my future. Now, my past is what gives me motivation to fight cancer however I can.
From the time I was a teenager, cancer has been part of my life. My mom developed ovarian cancer then, and she died in 1961 at the end of my freshman year in college.
Back then, cancer was not talked about as freely as it is now. For a long time my sister and I did not know why my mom was sick. My Aunt Helen had breast cancer at the same time, in both breasts. When her cancer spread to the bone, we were told she had very bad arthritis. Eventually, we learned that both my mom and my aunt had cancer.
I always wondered if I would get cancer, too. Was there anything I could do to prevent cancer? Whenever possible, I tried to live a healthy lifestyle. When I gardened, I gardened organically. I also avoided using chemicals for housekeeping or insect control.
In spite of my precautions, I was diagnosed with breast cancer at age 46.
Continue reading A positive twist: Confronting my cancer heritage.
Rhonda Armstrong Trevino, program coordinator in the Division of Pediatrics, wears two hats. She's a mom and an MD Anderson employee on the Family Advisory Council (FAC) in the Children's Cancer Hospital at MD Anderson.
As part of the FAC, Rhonda has the opportunity to be the voice of the patient and parent, while serving as a link between the Children's Cancer Hospital and MD Anderson.
Putting patients first is at the core of the FAC, and her role as a mother plays a big part in helping her stay focused on what matters.
How it all began
In 2005, Rhonda's daughter, Abigail, was diagnosed with osteosarcoma of the left distal femur (left thigh) at age 12. While many girls her age were excited about starting junior high school, Abigail was struggling with losing her independence.
Continue reading MD Anderson mom tells what family-centered care means to her.
By Chesley Cheatham, Patient Education Office
Just when you think you know something, life will teach you that you don't.
I thought I had a pretty good understanding of patients' experiences. I've worked in the Patient Education Office almost six years; I teach the New Patient/Family Orientation Class; I help develop patient education programs; and I even give tours of MD Anderson.
However, when my aunt was diagnosed with a rare type of sarcoma in March 2011 and became a patient here, well ... that's when I really learned a thing or two.
Listening in
Being at MD Anderson is like visiting a busy airport because you meet people from all over the world. Some people keep to themselves or rest, while others are eager to help, share their stories or hear yours.
Conversations are natural and friendly.
Continue reading Waiting room wisdom: The power of shared experience.
By Lura Lumsden, health education specialist, Patient Education Office - The Learning Center
Growing up in a small town in Virginia, I always had a huge vegetable garden, so eating healthy was easy. When I went to college, my diet changed. With my main focus on studying, I rarely cooked and often opted for quick meals that weren't always the healthiest option.
Since I began working at MD Anderson in The Learning Center, I've tried to live a healthier lifestyle. Good nutrition has become a priority, and I pay close attention to what my family eats. To ensure that we eat more fruits and vegetables, I prep all of the produce when I get home from the grocery store. I wash, cut and store it in the fridge so that I can grab and go.
What we offer
The Learning Center offers free information at all levels -- from very basic materials all the way to physician-level resources.
Although many of the cookbooks in The Learning Center are cancer-specific, the recipes are for anyone who wants to eat healthier.
Our Nutrition Pathfinder is a condensed list of reliable resources including books, cookbooks, videos, brochures and periodicals. Patients and family members are encouraged to use our email reference service to send us their questions.
Contact us at asktlcstaff@mdanderson.org.
Nutrition for patients
Proper nutrition is important for people who have cancer. The disease and treatment can cause changes in appetite. If you are experiencing changes in appetite or difficulty eating you should speak with a dietitian. At MD Anderson, every patient has access to a dietitian, so ask your doctor for a referral.
Continue reading Let's get cooking.
By Bonnie Nelson
Know your options
Your doctor has just told you that you have localized prostate cancer. While he's explaining your treatment options, all you're trying to do is not panic.
He's discussing different types of surgery or radiation therapies, while you're probably wondering, "What is localized prostate cancer?" and "How am I supposed to decide which treatment option is best?"
This
decision can be overwhelming and at times frightening. There are so
many different things to consider, so many new terms to learn and so
many opinions. Take a deep breath; here's some advice.
"Take your time, get the facts, and make a 'game plan.' "
Decision aid
Decision aids exist in various forms (e.g., pamphlets or videos) and are designed to
help people understand their health care options, consider the personal
importance of possible benefits and harms, and participate in decision
making. Decision aids are used when there's more than one medically
reasonable option.
Recently, a new decision aid for men with localized prostate cancer was released on the web and is available to the public. "Knowing Your Options"
is an interactive, web-based decision aid designed to prepare men who
have been diagnosed with clinically localized prostate cancer to have an
informed discussion with their doctor about which treatment options are
best for them.
Continue reading A Decision Aid for Men With Clinically Localized Prostate Cancer.
By Nita Pyle, associate director, Patient Education
Think
about the last time you wanted to learn something. What did you do? Did
you attend a lecture? Did you "Google" the topic? How about read a book
or magazine? Maybe, take a course?
As adults, we have developed
ways of learning that suit us best. Some of us are listeners, some
prefer reading and digesting information slowly, and some want that
hands-on experience that uses all our senses.
What you really need to know
As patient educators, we know that patients have a preferred learning style. We also know that there are barriers to learning at any particular moment. Your pain level might be too high or you are sick to your stomach. Your brain function seems fuzzy or maybe you don't have your glasses.
Health care professionals know patients are motivated to learn because the content pertains to you and your well-being.
As
a patient, you no doubt have been inundated with printed materials to
read. Has anyone told you what's really important in that material for
you to know and remember? Some of it may be nice to know, but not
critical.
Tips to take control
Here are things you might want to consider when you want to learn, need to learn or when it's just not a good time to learn.
Continue reading The Role of the Modern Patient: Always Learning.
By Jan Peine, Anderson Network volunteer
Having a cancer diagnosis is frightening enough. Having a more rare form of cancer adds a layer of isolation to the mix.
I have neuroendocrine tumors known as carcinoid, which have metastasized from my intestines to my liver. There is no cure at this stage, but it is often slow growing.
While this may sound like a late diagnosis, the discovery of my tumors was early for a carcinoid patient. Most carcinoid tumor patients spend several years with intestinal pains, diarrhea, bloating or facial flushing. They go from doctor to doctor for a diagnosis, or from one incorrect diagnosis (such as irritable bowel syndrome or Crohn's disease) to another.
Shell shock
In my case, I felt healthy, with good results on my annual check-up. But because I was older than 50, I decided to get a colonoscopy.
When I woke from that procedure the doctor said he found an interesting nodule, which he sampled. The lab performed some special staining on the tissue sample. It was carcinoid cancer.
Continue reading You're Not Alone: Finding Support and Encouragement.