By Shane Scott
I had been married to the love of my life for about two years and we were just getting our feet on the ground when I received my testicular cancer diagnosis. It happened so fast. I went from having an ultrasound to having an operation the next week. After the surgery, we found out the testicular cancer had spread to my lymph nodes and I would need chemotherapy.
At that point, fertility was the last thing on my mind. I was so worried about beating cancer that I didn't think about how the chemotherapy could cause infertility. How do you look past a life-changing diagnosis and think about the future you may or may not have?
Once I learned about options for addressing infertility, though, the idea of having children was one of the main things that helped me make it through chemo.
My testicular cancer treatment
After my testicular cancer diagnosis, it seemed any news we got was not good. Despite undergoing chemotherapy five hours a day for five days a week, my tumor weren't shrinking. I also lost my hair and didn't have any energy. Then, finally on my third cycle of chemo we started to see some positive progress. I was ecstatic, but I knew my treatments were far from over.
Recently in Survivorship Category
By Shane Scott
By Wendy Griffith, Social work counselor
Appointments. Side-effects. Medications. Side-effects from medications. More sickness. Lengthy tests. Hospitalizations. It can be a lot at any age, but for young adults (generally those ages of 18 to 39), it can be especially so at a time when it feels like life is just really getting started. How are you supposed to manage all of that, much less cope with it?
The answer is different for every person. But if there is one thing that can help young adults cope with cancer, it's social support. In fact, that's true for cancer patients of all ages.
What is social support?
Social support essentially refers to the feeling of comfort, care and connection that you get from others. "Others" could be immediate family, extended family, close friends, acquaintances, neighbors, coworkers, and yes, even strangers. These individuals might help you by providing emotional support, physical support, financial assistance, laughter, motivation, distraction or a combination of all of the above. It all depends on what you need or want, and that can completely change from day to day.
Why social support is important
No matter what your exact situation is, being sick can get lonely.
Even patients with incredible support systems feel alone from time to time, or need a little extra boost from outside their network. We need different things, at different times, from all kinds of different people.
Walking into the unknown is scary, especially when the unknown is cancer treatment. Fortunately, many of our brave and inspiring cancer survivors are willing to share what they've learned from chemotherapy, hair loss, a diagnosis and many other experiences.
Here's some of the best advice we received in 2014:
Kyssi Andrews' three lesson on coping with hair loss
After her Wilm's tumor returned, 6-year-old Khyrstin (Kyssi) Andrews wasn't excited about losing her hair again. So, her mother Marla helped by making it fun and reminding her that she's beautiful no matter what.
Read how Marla helped Kyssi cope with saying goodbye to her hair.
5 ways to make cancer treatment more fun
After Marshall Lauen was diagnosed with stage 2B Hodgkin's lymphoma, he and his wife Ashley became determined to make his lymphoma treatment as fun as possible. "After all, we're fighting for his life, not just a clean PET scan," Ashley says.
Find out how Ashley and Marshall bring fun to MD Anderson.
A monstrous art project. A groundbreaking lung cancer screening trial. Inspiring stories from our patients and caregivers. Our mission to end cancer. These are just a few of the topics that been popular on MD Anderson's YouTube channel in 2014.
To find out what you missed -- or rediscover some favorites -- check out our top five videos from 2014.
What drives MD Anderson to end cancer
What if we could end cancer? This is the bold idea that guides everything we do here at MD Anderson. Watch our patients, survivors, volunteers and employees describe the hope they feel here and share why they believe MD Anderson is the best place to treat and ultimately end cancer:
No matter where you are in your cancer journey, you're likely curious about cancer prevention and treatment. Or, maybe you're trying to figure out how to manage an unexpected side effect or whether or not you can exercise during cancer treatment.
Whatever the case, you're sure to find wisdom, guidance and hope in the insight of our doctors and other experts, many of whom shared their expertise here on Cancerwise and in our Cancer Newsline podcast series in 2014.
Below, we've pulled together some of the most helpful insight and advice our doctors and other experts shared this past year. We hope you find something here that helps or inspires you in your cancer journey.
Immunotherapy: Unleashing the immune system to attack cancer
We're making great strides in immunotherapy, a new way of treating cancer that targets the immune system rather than the tumor itself. And, this innovative approach, developed by Jim Allison, Ph.D., professor in Immunology, will open doors for treating all types of cancer. Learn more in this podcast with Allison and Padmanee Sharma, M.D., Ph.D., associate professor in Genitourinary Medical Oncology and Immunology.
Understanding the new HPV vaccine
Recently, the U.S. Food and Drug Administration approved a new vaccine targeting nine types of HPV, including five that haven't been covered by other vaccines. And, for those who get the vaccine, that means even better protection against cervical cancer, oral cancers and other cancers linked to HPV, says Lois Ramondetta, M.D., in Gynecologic Oncology and Reproductive Medicine. Find out what you should know about the new HPV vaccine.
By Eric Tidline, Social Work Counselor
Cancer-related fatigue is one of the most common issues patients face. Even among patients who have completed cancer treatment, fatigue is one of their foremost concerns.
Fatigue describes a physical and/or mental state of being tired and weak. Physical fatigue and mental fatigue are different, but they often exist together, which can make the experience even more frustrating.
However, it is often possible to curb cancer-related fatigue. Although it may sound counterintuitive, moderated exercise is the number one treatment for cancer-related fatigue.
For some, walking, weight lifting and cycling are great ways to exercise. But if you aren't ready or aren't able to participate in such activities, you might find progressive relaxation exercises helpful. Progressive relaxation is one type of exercise that is often gentle enough to meet most people's needs.
What is progressive muscle relaxation?
Progressive muscle relaxation is based on the idea that the body responds to anxious thoughts by tensing muscles, and the tense muscles add to the anxiety, creating a cycle of stress.
From the gardens to the skybridge to our leading doctors and kind volunteers, there are many things that set MD Anderson apart and help our patients feel at home.
Whether it's your first appointment or you've become an old pro, you're likely to appreciate these 17 unique features.
1. Our 69 aquariums. The 66 freshwater and three saltwater live coral reef aquariums in our clinics are home to 3,000 fish -- mostly cichlids, angelfish and rainbow fish. The largest freshwater aquarium, by the Pharmacy in the Main Building, holds 850 gallons.
2. The Observation Deck. Located on the 24th Floor of the Main Building, the Observation Deck offers peace and quiet, as well as a scenic view of Houston. You're also welcome to play the piano up there.
3. Our volunteers. MD Anderson is fortunate to have more than 1,200 volunteers who contributed 193,921 hours of service last year. Stop by our Hospitality Centers for a cup of coffee and to visit with these caring individuals, many of whom are survivors or caregivers themselves.
4. Our pianos. Twenty-five of our volunteers play the piano in The Park and the Mays Clinic between 10 a.m. and 5 p.m. Mondays through Fridays. They also play at the Rotary House each day. If you're lucky, you may hear our harpist or one of our two flautists as well.
5. Room service. Inpatients -- as well as their families, caregivers and friends -- can order whatever they want from room service each day from 6:30 a.m. to 9:30 p.m. Our classically trained senior executive chef comes up with the menu of fresh, cooked-to-order meals.
By Rachel Cruz
Even though I'm a melanoma survivor, I rarely associated cancer with life until recently. Mortality statistics are abundant and easy to research, and we all know too many people who have succumbed to the disease. Those are the statistics and experiences that tend to come to mind when you hear the word "cancer."
But when I attended the Anderson Network Cancer Survivorship Conference last year, I realized that there is life after cancer. And not just life, but positive, healthful living.
Three years ago I was diagnosed with melanoma 16 weeks into my first pregnancy.
Fortunately, my melanoma was removed 19 days after it was diagnosed, and I delivered a healthy baby right on schedule.
What I gained from the Anderson Network Cancer Survivorship Conference
With my melanoma treatment behind me, I began volunteering at MD Anderson. A few of the other volunteers invited me to attend the Cancer Survivorship Conference.
I gained so much more from the experience, though.
By Victor Hassid, M.D.
Fortunately, patients have choices when it comes to breast reconstruction. There is no cookie-cutter approach, and patients need to discuss their options in depth with their physician.
Here are five of the most common breast reconstruction myths I hear.
Myth: Breast reconstruction must take place immediately after a mastectomy.
Some women aren't certain they want breast reconstruction and wait months or even years before having surgery. Patients still undergoing breast cancer treatment may want to wait until after they have completed radiation, as radiation can limit your options for reconstruction and affect the final result. However, other women want to have breast reconstruction when they have their mastectomy.
There is no right time to undergo breast reconstruction. The timing of your reconstruction should be up to you and your physician.
For many of our patients, peripheral neuropathy is among the unexpected side effects of cancer treatment.
It's caused by damage to your peripheral nerves -- that is, the nerves that are farther away from your brain and spinal cord. Certain complications of cancer or cancer treatments can cause or worsen neuropathy. So can some health conditions, such as diabetes, alcoholism, AIDS, hypothyroidism, rheumatoid arthritis and carpel tunnel syndrome.
We recently spoke with Julie Walker, advanced practice nurse in Neuro-Oncology, about peripheral neuropathy. Here's what she had to say.
What causes peripheral neuropathy in cancer patients?
The nerve damage that causes peripheral neuropathy may be the result of many different factors, including some chemotherapy drugs using vinca alkaloids, platinum compounds, taxanes and thalidomide.
By Erika Archer Lewis
Nine weeks after undergoing a prophylactic double mastectomy, I met with a physical therapist at my doctor's suggestion. I'd had pain in my arms and had not been able to fully extend them since the surgery. I was excited about this meeting. I knew it would be yet another tool to help me manage my new body.
After a lengthy conversation with the physical therapist and lots of questions, a few physical motion tests, then some poking, prodding and painful extensions, some measurements, and assessments, I was diagnosed with lymphedema.
At the time, I had no idea what lymphedema was. But since my diagnosis I've learned a lot about this cancer treatment side effect. Here are some of the questions I get asked most frequently about lymphedema.
What is lymphedema?
Lymphedema is a collection of protein-rich lymphatic fluid. The protein acts as a magnet for more swelling and feeds infections. It's typically caused by an interruption to lymphatic flow, like surgery, radiation, infection or trauma.
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- Facing infertility after testicular cancer treatment
- How young adult cancer patients can find social support
- Best of Cancerwise 2014: Advice from our cancer patients
- 5 of our most-watched videos from 2014
- Our experts' most helpful insight from 2014
- Beating cancer-related fatigue with progressive muscle relaxation
- 17 things that make MD Anderson unique
- What cancer survivorship means to me
- Breast cancer survivor celebrates second chance with 537-mile bike ride
- 5 common breast reconstruction myths
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