From OncoLog, August 2013, Vol. 58, No. 8
Specialized Care Improves Lives of Patients With Head and Neck Lymphedema
By Bryan Tutt
unique program is producing dramatic results for patients with head and
neck lymphedema, a side effect of cancer treatment that can interfere
with a patient’s ability to speak, swallow, or breathe.
Although lymphedema is most often managed by physical, occupational, or massage therapists with specialized training, many of these certified lymphedema therapists will never see a patient with head and neck lymphedema.
“Extremity lymphedema is the physical or occupational therapists’ area of expertise. When lymphedema occurs in the head and neck region, it often affects the ability to speak, swallow, or breathe, and its treatment requires a unique skill set,” Dr. Lewin said. She believed that head and neck lymphedema treatment outcomes could be improved by training speech pathologists—who were already familiar with the anatomy and physiology of the head and neck and were likely to be treating the patients for speech and swallowing dysfunction—to become certified lymphedema therapists.
The head and neck lymphedema program in the Department of Head and Neck Surgery began in 2006 and now has two speech pathologists who are certified lymphedema therapists, Brad Smith and Leila Little. They provide evaluation and treatment to patients referred by MD Anderson physicians or by physicians outside the institution as well as patients who are self-referred but have been diagnosed with head or neck lymphedema by a physician.
The program of management for head and neck lymphedema at MD Anderson consists of outpatient treatment provided by a certified lymphedema therapist combined with a self-directed treatment program that the patient can perform at home. Although some patients come for routine outpatient visits, most can manage their lymphedema at home after one to three visits and return in 4–6 weeks for a followup evaluation. “The ability to easily access the head and neck region allows much of the therapy to be performed at home, a feature that enhances patient adherence to the therapy regimen,” Mr. Smith said.
During their initial visit, in addition to receiving manual lymph drainage, most patients are provided with compression garments to maximize drainage from swollen areas. Although some patients require custom-made garments, such garments are often expensive and not always covered by insurance. Ms. Little said that less expensive standard compression garments can usually be modified to fit patients. She added that these customized garments are comfortable and can be worn while sleeping if needed.
“The majority of our patients tell us that their swelling is worst when they first get up in the morning and improves throughout the day. That’s the opposite of what patients with extremity lymphedema experience; their swelling increases throughout the day,” Mr. Smith said. “This is why management of swelling in the arms or legs is often a life-long process. In contrast, patients with head and neck lymphedema often respond quickly and avoid the need for lifetime treatment.”
According to Dr. Lewin, there is no standard objective measurement to evaluate treatment outcomes in patients with lymphedema in the head and neck area. Instead, photography and tape measures are used to document change over the course of treatment. “Our data over the past 6 years show that more than half of patients demonstrate improvement on their first follow-up visit, and more than 70% show an overall reduction in lymphedema if the patient has been compliant with the treatment program—regardless of whether the setting is outpatient or home-based,” she said.
Mr. Smith said, “We can almost eliminate the swelling in patients with mild edema within 6 months. For patients with severe scarring and more swelling, it may take longer. Even if we can’t eliminate the swelling, we’re almost always able to get some improvement.”
Although the management of lymphedema should first be attempted with complete decongestive therapy, Dr. Lewin said that surgery is an option for patients with chronic, severe head or neck lymphedema when standard methods of treatment are ineffective.
Ms. Little added that better long-term results are achieved when lymphedema is treated in its early stages—before the tissue becomes fibrotic. Therefore, patients whose edema has not resolved within 4–6 weeks of the completion of treatment for head and neck cancer should be referred for evaluation. “There are usually treatment options available,” she said. “Lymphedema isn’t something a patient should have to live with.”
For more information, call Dr. Jan S. Lewin at 713-745-2309.