I am Laura Walther-Broussard, a Social Worker here at MD Anderson. If you are an MD Anderson patient, you can contact Anderson Network at 800-345-6324 and they will put you in touch with a penile cancer survivor. If not, please respond to the message board and we can search other avenues to find someone for you to talk to. Hope your day is going well :)
Laura: Hello. I am looking for information and/or support. The man I love dearly has just been diagnosed with penile ca (S II & III), and the first medical opinion includes partial, or total, penectomy as the first stage of treatment. My professional background is hospital chaplaincy, though I am not working in that field at present. Any suggestions you might have for me would be welcome. Thank you.
Your boyfriend is very lucky to have such a caring partner as you! Your question asks about information/support resources, and it sounds like you're wanting to talk to others in similar situations. Perhaps you can see if there is a Social Work department afffiliated with your physician who can find appropriate resources in your community. Also, since you are a chaplain, maybe pursuing support within your church congregation would be helpful. Finally, MD Anderson's website has some good information on penile cancer. Here's a link:
Daniel, I have been monitoring this message board for some time and frankly have been quite dissapointed at the lack of participation. I was diagnosed in Jan 04 with advanced prostate cancer. Have had sounds of radiation, chemotherapy, hormone therapy and now am in a phase III trial. I have been doing quite well and still work most of the time and ride my motorcycle when weather permits. I don't know if I can help you with anything but I am certainly willing to talk to you. I can give you a call or direct email if you post address. Terry in Houston.
I just learned of this site and have waded in and registered and am now posting because of you.
I am willing to talk, but I warn you I am untrained and am a patient. My experiences may be vastly different from yours. Regardless, I am willing to listen, and talk if needed.
I was diagnosed with penile cancer a few years ago and followed up in the time being with assorted biopsies and two rounds of Aldara topical chemo. I also had superficial lymph node packets removed bilaterally after the first tumor removal. The nodes came back clear.
I have had local reoccurances that have been mainly managed by excisional biopsies. Lately they have found the cancer is more invasive and have been unable to get clear margins.
I was quickly scheduled to have a partial penectomy last week, but the results of my CT scan showed some enlarged lymph nodes so the surgery was canceled and now I am awaiting a CT guided needle biopsy to see if they are malignant.
So that is where I am at and I hope your journey has been better.
There seems to be few options for treating penile cancer. I think that like all forms of cancer, the individual patient's specific situation mainly dictates that though.
How are you Daniel? What would you like to talk about?