Daniel (and everyone else),
I just learned of this site and have waded in and registered and am now posting because of you.
I am willing to talk, but I warn you I am untrained and am a patient. My experiences may be vastly different from yours. Regardless, I am willing to listen, and talk if needed.
I was diagnosed with penile cancer a few years ago and followed up in the time being with assorted biopsies and two rounds of Aldara topical chemo. I also had superficial lymph node packets removed bilaterally after the first tumor removal. The nodes came back clear.
I have had local reoccurances that have been mainly managed by excisional biopsies. Lately they have found the cancer is more invasive and have been unable to get clear margins.
I was quickly scheduled to have a partial penectomy last week, but the results of my CT scan showed some enlarged lymph nodes so the surgery was canceled and now I am awaiting a CT guided needle biopsy to see if they are malignant.
So that is where I am at and I hope your journey has been better.
There seems to be few options for treating penile cancer. I think that like all forms of cancer, the individual patient's specific situation mainly dictates that though.
How are you Daniel? What would you like to talk about?