Hello Dal,
In addition to other bladder cancer patients replying to your post, you could join MD Anderson's Bladder Cancer Support Team. Information about their activities can be found at:
http://www.mdanderson.org/departments/bladdercansup/
You can also access Ask MD Anderson at:
www.mdanderson.org/ask or 1-877-MDA-6789
Hope this helps. Please let us know how things are going for you :)
-Laura Walther-Broussard, Social Work Counselor, MD Anderson