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Anonymous
Subject:Lynch Syndrome and Bladder Cancer

I am a female with diagnosed Lynch Syndrome, the colon cancer gene. In woman, there is a higher incident at an earlier age for endometrial, ovarian, and bladder cancer, as well as a high incidence of multiple cancers simultaneously.

Well, after two brothers with colon cancer, I hit the trifecta: endometrial (Stage IIIC), Ovarian Stage II, and Bladder (Stage II) in July 2005 at age 48.

Today, I am happy and well after a transurethal resection, total hysterectomy, chemo and radiation.

I have had no recurrence of the bladder cancer, and I was very lucky that the location allowed my doctor to cut the cancer out and just laser my ureter back to the bladder.

I have had very few issues with it, but I do, after almost three years from surgery, have urgency issues and need to wake two or three times a night to go. My doctor said the pills might help, but after three years of pills for the other cancers, I really don't want to take anything. Aside from not drinking anything at night, does anyone have any advice?

Sorry this is so long, but I try to educate people about Lynch when I can, and bladder cancer being one of the ones associated with it, people should know.


Posted: 11 Jul 2008 05:35 PM
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TGardiner

TGardiner

Total Messages 11

Subject:Lynch Syndrome and Bladder Cancer

It really sound like you have gone through alot with your diagnosis. Besides speaking with your medical team you may want to contact another patient through Anderson Network.

Patient & Caregiver Support Line
800-345-6324

Tena Gardiner, LCSW

Sr. Social Work Counselor

 


Posted: 18 Jul 2008 09:52 AM
Originally Posted: 18 Jul 2008 09:53 AM
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