In March, they discovered a mass that had spread to my lung which was surgically removed. I was doing fineand has an all clear brain scan in June, then suddenly 3 weeks ago I developed an intense headache and earache. I went in for a scan and the doctors discovered 8 tumors in my brain with a lot of edema. I was admitted into MD Anderson and am undergoing radiation treatment. The challenge has been to get the swelling down and the pain under control. To that end I am on high steroids and high pain meds. Hopefully, I will be going home in a few more days. Sutent or Nexavar is planned next. Anyone had experience with that? We are still in shock and trying to reconcile ourselves with this sudden change.
So sorry to hear about your medical setback, especially in light of dealing with the effects of Hurricane Ike here in Houston. I hope your home avoided damage/flooding! As far as others who have utilized Sutent or Nexavar, perhaps Anderson Network (713-792-2553) or your medical team can identify someone for you to talk to. Good luck--our thoughts are with you. Please let us know if we can be of help in any way.