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DGN

DGN

Total Messages 2

Subject:Proton Therapy info???

I am newly diagnosed with prostate cancer and, like everyone else, Im eagerly looking for the cure. Ive read about surgery, radiation, ProstRcision, and CyberKnife, and so far I would lean toward Proton Therapy. But Ive always been told that if something seems too good to be true, it probably is. Ive read on the MD Anderson website that they monitor you for side effects during and following the therapy, but I find nothing that tells what those side effects might be. I live in southwest Arkansas, so MD Anderson would be the closest place offering Proton Therapy. But I still have lots of questions: How long have they been doing Proton Therapy? How many patients have they treated? What are their results so farare they comparable to Loma Lindas? I would really appreciate any input I can get.

 

I am 54 years old. I found out at my annual check-up on 12-18-08 that my PSA had elevated from 2.2 to 4.0 over the past year. 12 biopsies were taken on 1-14-09.  9 of the 12 were benign (3 of those with atrophy). The other 3 biopsies read like this: Right Lateral Base: Adenocarcinoma, predicted Gleason score 6 (3+3), involving 10% of the tissue. Right Base: High Grade Prostatic Intraepithelial Neoplasia. Right Apex: Atypical small acinar proliferation, highly suspicious for prostatic adenocarcinoma.

My urologist suggests surgery or radiation. I told him I wanted to do a little more research, but obviously I don't want to wait too long.

 

Thanks for any advice you can give.

 

DGN


Posted: 07 Feb 2009 11:23 PM
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TGardiner

TGardiner

Total Messages 11

Subject:Proton Therapy info???

Dear DGN,

It sounds like you've done alot of research regarding the multitude of treatment options out there for prostate cancer. 

One website you may want to visit is: http://www.protonpals.net/

The website has alot of information by patients who have undergone proton therapy treatment at M.D. Anderson.  The center here has been operating for approximately 2.5 years. I don't know the answers to your other questions in terms of treatment effectiveness and such.

Also the patient information and referral phone number is:1-866-632-7482.

Tena Gardiner, LCSW, Sr. Social Work Counselor

 


Posted: 10 Feb 2009 01:55 PM
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DGN

DGN

Total Messages 2

Subject:Proton Therapy info???

I had pretty much decided in favor of Proton Therapy. I just can't go the surgery route with all its potential side effects. Not too crazy about traditional radiation therapy either...just about as many side effects. But I have found out that my insurer, Arkansas Blue Cross Blue Shield, doesn't cover proton therapy. So I guess I'm back to square one. Has anyone else had similar problems from your insurance company, and how did you proceed? Also, does anyone know the cost of proton therapy, in case I decide to proceed and fight the insurance company later?

Thanks.


Posted: 15 Feb 2009 02:05 PM
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TGardiner

TGardiner

Total Messages 11

Subject:Proton Therapy info???

Dear DGN,

You may want to give the Proton Center a call regarding the cost at:

1-866-632-7482.

Tena Gardiner, Sr. Social Work Counselor

 


Posted: 18 Feb 2009 12:20 PM
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fourreel

fourreel

Total Messages 3

Subject:Proton Therapy info???

 

Remove the tumor and if you have clear margins and not lymph your good to go. Mine were not that way but I am still cooking and have a very slow grower. Will ablate somewhere in the future.


Posted: 11 Feb 2009 07:59 PM
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TMecklin

TMecklin

Total Messages 1

Subject:Proton Therapy info???

If you are still considering all options, I have similar numbers (Ocober '08 biopsy) and age as you and I got seeds implanted last week at MDA.  Drs. Steven Frank and David Swanson are doing a clinical trial where they follow up for ten years with quality of life issues. They have a 100 patient limit on this trial and I was #84. I had intially travelled from Austin to Houston to research proton, but I really can't afford to stay in Houston for 8 weeks, and the doctor at proton referred me to Dr. Frank. FYI not all patients get accepted for seeds- your pre-surgery urinary function needs to be good. The seeds required me to stay in a hotel in Houston for 3 nights- the actual surgery is out patient. Hope this helps.


Posted: 20 Feb 2009 12:48 PM
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