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Anonymous
Subject:RADIATION PROSTITIS

I completed proton therapy at Shands last October. In June,  I detected rectal blood.  It increased to about 12 episodes per day and is now about 5 or 6. Shands prescribed hydracort suppositories for 2 weeks and canasa for the next 6 weeks. The blood appears lighter now but has been quite heavy.

Shands has no gastro docs in their Jacksonville or Gainesville hospitols that they can refer me to a gastro doc in private practice in Jacksonville (4 hours each way from me).

Shands doctors seem adamant that a colonscopy is out of the question while the gastro doctor that I saw in Tampa is ready to do one now. Right now, I am off of any medication for 2 weeks.

I cannot find any reference that talks about others having this problem. I would appreciate any reference that you can give me.


Posted: 06 Aug 2010 09:21 PM
Originally Posted: 06 Aug 2010 09:19 PM
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LWalther

LWalther

Total Messages 69

Subject:RADIATION PROSTITIS

Hello Anonymous-

Sorry you are suffering from radiaiton prostatitis.  Fortunately or unfortunately, it is a fairly rare side effect of proton therapy.  If you are still having this problem you may want to consult the following proton peer support website:

http://protonpals.net/

Best of luck to you and please keep us up to date on your progress,

Laura Walther-Broussard, LCSW, MD Anderson Social Work Counselor


Posted: 18 Aug 2010 12:58 PM
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