I just turn 50 and got the gift of prostate cancer within same month. I had a Ulcerative colitis for 15 years and treated with Iliostomy. Now I have no Colon but have the J-pouch (Bag) and very close to it is prostate. MD Anderson team started with Hormone treatment and now decided to remove the prostate with RALP.
Is someone in support group have GI issues with prostate cancer and if they have any experience, please share with me. I'm very scared and at this time my whole life is in hold. I can't see the light at the end of the tunnel. Only hope is that I'm getting treatment with best hospital being in Houston.
Thank you and please share your experience.
Posted: 01 Oct 2011 02:53 PM Originally Posted: 01 Oct 2011 02:54 PM
Sorry to hear about your prostate cancer diagnosis. It must be hard to cope with in light of your other medical problems.
MD Anderson has a service where they match patients with similar diagnoses/medical problems with current patients called Anderson Network. This may be a good way for you to connect with others in similar situations. Anderson Network can be reached at 713-792-2553 or www.mdanderson.org/andersonnetwork
Also, you can contact your Social Work Counselor at MD Anderson at 713-792-6195 who can help with additional support resources.
Take good care of yourself and keep in touch with your progress,
Laura Walther-Broussard, LCSW, MD Anderson Social Work Counselor
I have read some articles regarding testosterone therapy following prostectomy. I undertand the studies are small but just wanted to get an opinion from a doctor at MD Anderson on their take. Of course I understand that it depends on the person and the condition they were in prior to surgery. Can you post a brief reply on any merits or concerns a patient should bring to their primary care prior to starting testosterone. Can you give me any criteria you would expect of any patient prior to starting any treatment like this? Thank you in advance of any guidence you can give as I consider the doctors at MD Anderson the authority.
I understand fully the fear of the unknown considering the diagnosis, treatment and possible side effects of treatment. If I may add my 2 cents. I had a prostectomy done 5 years ago at MD Anderson. Considering the unhappy circumstances, I was shocked at the fantastic care I received from everyone. They litterally walked beside me thru the whole process and gave me the confidence I needed to start breathing again. Now, 5 years later I am still getting a "no-trace" on my PSA. I feel great, All the side effects I was concerned about have completely gone away (I was impotent for about 4 months). But with the help of my doctors, Viagra for a year, I am back to functioning 100% without any meds. I am also never THINKING of cancer. I feel like MD Anderson is or should be everyones 1st choice even if you have to travel. Put your faith in the treatment, listen to your doctors and God willing, you will have the outcome you desire.